Spoiler alert. Today’s post is about one of my favorite parts of my trip to Rome. I’ve been trying my best to hold off on sharing it until the very end, but I simply cannot. When my brother and his wife first moved to Rome, amidst the stammers and awkward pauses in their language classes*, … More La Locanda dei Girasoli
For a few magical hours Friday night, Jon was a king. For one night, he was in a place where his disability didn’t make him a minority, but instead, raised him up to shine. Friends, you know I have no loyalty to any sports teams or athletes. I choose who I’m rooting for based on … More Shine.
The funny thing about the future, at least for me, is I tend to treat it as an impossibility. When Jonathan was little, and his end-of-July birthday rolled around, as it inevitably would, I’d say to him, “How old are you going to be, 25?” To which sometimes I’d receive a pudgy cheeked smile accompanied … More How Old Are You, 25?
In case you are an occasional reader of my blog, here’s the background you need in order to understand this post: My youngest brother, Jonathan, has Down syndrome. He is one of my favorite people on earth. Jonathan, also known as Jon, Jonny, J-Bear, Jonny bo Bonny, Jonny Joo Joo, and more, is one of … More SONJ, 2017
If you’ve been following all the build up for this day, then you know I’ve chosen today to share, for the first time ever, a chapter from my book. What started as a sibling guidebook turned into a realistic fiction novel* about a young man with Down syndrome’s transition into adulthood and the experiences his … More World Down Syndrome Day, 2017
Friends, World Down Syndrome Day is coming! Usually, I post about WDSD only once…on the actual date: 3.21 I have something extra special planned, something I’m so so so excited to share with you, which is part of the reason I’m starting the discussion early.* *The end of this post reminds you of the second reason … More It’s Coming!
Though I’ve mentioned the National Aquarium before, along with Hubby’s love of sea creatures, I realized I have never really, really posted here about the National Aquarium*. While New Jersey does have a phenomenal aquarium, the reason I think we enjoy the National Aquarium has as much to do with what is inside the aquarium … More National Aquarium…Jon style
Exactly one month from today, I will celebrate the fifth anniversary of my 25th birthday. I’m totally excited about it, can’t you tell? September is perhaps the worst possible month to celebrate a birthday, especially for a child. Despite how put together most teachers may outwardly appear during that first day of school, ask them … More Birthdays, aka, Your Wonderful Life
In regard to last week’s post I would like the record to show that Jonathan has enjoyed Wawa not once, but twice since my refusal to treat him to a Wawa sandwich as a “snack”. I would also like to reiterate that the boy wanted this “snack” only minutes after having eaten dinner. (Let the record also … More Spread the Word to End the Word
The East Coast has something that not only makes it better than all other coasts (I’m looking at you West Coast), but also better than all other time zones. If you’re an East Coaster…you’ve probably already guessed it. If you aren’t, let me introduce you to the wonder that is Wawa. At least in Jersey, … More The Addictive Nature of Wawa Hoagies