Spoiler alert. Today’s post is about one of my favorite parts of my trip to Rome. I’ve been trying my best to hold off on sharing it until the very end, but I simply cannot. When my brother and his wife first moved to Rome, amidst the stammers and awkward pauses in their language classes*, … More La Locanda dei Girasoli
I realize my blogging the past few weeks has been spotty, at best. In fact, this is my first post this month. Yikes. I wish I could give a solid reason why, but ultimately it’s a matter of searching. Searching for what I want to devote the majority of my time and energy to and … More World Down Syndrome Day, 2018
For a few magical hours Friday night, Jon was a king. For one night, he was in a place where his disability didn’t make him a minority, but instead, raised him up to shine. Friends, you know I have no loyalty to any sports teams or athletes. I choose who I’m rooting for based on … More Shine.
There was no question about bringing Jon* along on our family cruise. *In case you are new here, read this for reference. However, we began to learn only two days into our trip this choice, which had been natural for us, was one others have debated for years. As soon as the first hint of … More Mr. Jonathan, Celebrity Cruiser
In case you are an occasional reader of my blog, here’s the background you need in order to understand this post: My youngest brother, Jonathan, has Down syndrome. He is one of my favorite people on earth. Jonathan, also known as Jon, Jonny, J-Bear, Jonny bo Bonny, Jonny Joo Joo, and more, is one of … More SONJ, 2017
If you’ve been following all the build up for this day, then you know I’ve chosen today to share, for the first time ever, a chapter from my book. What started as a sibling guidebook turned into a realistic fiction novel* about a young man with Down syndrome’s transition into adulthood and the experiences his … More World Down Syndrome Day, 2017
Friends, World Down Syndrome Day is coming! Usually, I post about WDSD only once…on the actual date: 3.21 I have something extra special planned, something I’m so so so excited to share with you, which is part of the reason I’m starting the discussion early.* *The end of this post reminds you of the second reason … More It’s Coming!
One of my favorite days in the year is soon approaching: World Down Syndrome Day! This is the day we come together to raise awareness globally and to support the rights, well-being, and inclusion of individuals with Down syndrome. I’ve shared before what this day and Down syndrome mean in my life, but now I have … More Jonny is My Hero
Every Tuesday, Jonathan sleeps over. Any day spent with Jonathan isn’t as simple as “let’s hang out”. It includes a numbered list of what we’ll do, which usually doesn’t differ too drastically from week to week. My favorite part of the night, aside from snuggling on the couch watching Once Upon a Time episodes, is cooking … More Cooking with Jonathan
Experience is the best way to understanding. So I will tell you of an experience that I wouldn’t trade for the world because of the understanding it has given me. I am fortunate to have grown up with a brother who has Down syndrome. While it’s hard to accurately convey what I mean by this, … More World Down Syndrome Day, 2016